Being re-admitted …

Up at the triage they stare at my hunched over shaking, shivering self. Nurse Kate quickly and efficiently tells them I probably have a very high fever and that I am three days postpartum.

She asks my mom if we got it from here, looks at me and squeezes my hand “good luck” and off she goes.

The triage nurses aren’t as efficient however, instead of taking me to a room they are asking me a bunch of questions that I can’t really answer in my state. I just want to lay down with a bunch of warm-no hot-blankets (where is a sauna when you need one?) and for these shakes to go away, they are seriously starting to bug me, like for real.

I wish I could be down in the NICU, healthy and strong for my baby girl, feeding her and then meeting up with the rest of my family, picking up some to-go food and sleeping in a warm cozy bed at home tonight.

I really don’t want to be in the hospital that is for sure, and I really really thought I was done dealing with hospital staff and nurses with their questions. I am too sick however to reflect much on take-out food and annoying nurses and a little too scared to want to walk up and leave, besides again, I don’t think my legs would carry me.

My mom seems even more worried than before as she keeps telling me to try to relax. I am so stiff and my muscles are already aching from shaking so much but I can barely tell due to, you guessed it, the violent shivers (it’s like my body is an earthquake refusing to stop).

When they take me into a room (finally) they have even more questions (of course they do) but as they take my vitals, they refuse to tell me anything as usual (starting to get used to this). I feel mad in between the shakes, enough is enough and I would really show my anger had I not felt that I was going to pass out any moment.

My only request was warm blankets (I know they have them these sneaky nurses, I have gotten them before, for example during my ultrasound) but they refuse to give them to me. Not until my mom, seeing her daughter suffering asks why, they tell us that it could mess up the readings on my vitals, for example my correct body temperature.

They haven’t told me yet what my temperature is but when I ask point blank the nurse tells me that it is not crazy high, around 103. I hate these Fahrenheit temperatures, they make absolutely no sense, come on, Celsius is both understandable and easy; convert already! (yes, I’m worked up, excuse me and yes I know it is not their fault I’m sick…or is it..?).

At this point I feel incredibly nauseous, I tell the nurse as my mom tells me that I will not throw up, it is just in my head, trying to calm me down. The nurse wisely gives me a little plastic thing to throw up in “just in case”. Now don’t get me started on these thingies, they are like plastic bags (more like cones though) slim and cone shaped and they do not seem like the perfect thing to vomit in. Ever heard of a bucket? I know this is beyond gross but how do you even aim? I am throwing (mostly spitting up) in my little plastic cone as my mom tries to convince me to calm down and lay back, except I can’t.

Literally I can’t, my neck is so stiff and I am still shaking so bad, I can’t tell my muscles to relax enough to lean (let alone) lay back (which also makes aiming and spitting up into this plastic thing next to impossible).

In the back of my mind I also realize three things, I have to pee really bad, I fear that they will keep me here over night and I haven’t called my husband to fill him in yet (peeing obviously being my top priority).

That being said I don’t think I can get up so instead I spit up some more, try taking my iPhone from my mom (who got it from my purse) but my hand is shaking too much to even hold it, I momentarily get mad a my headband (don’t ask, it is in my way) and finally just have my mom text my husband that I will probably be re-admitted to the hospital (yay me).

It is somewhere in the middle of this when the real vomiting starts (that is right, here comes my lunch…sorry guys). My husband keeps calling after receiveing my text but I just feel too weak to even talk to him.

We keep waiting for different nurses to come into the room, check something, mumble something to each other I hushed voices, tell us absolutely nothing and leave again.

I keep getting mad at the one nurse who stays, because I really just want to know what is wrong with me so that they can fix it and I can be on my way.

I also really don’t want to stay in the hospital another night but I am sane enough to realize that this is serious and they will not release me like this.

My mom holds my hair while I’m throwing up like I am a little kid all over again and she keeps telling me that everything will be okay and to go easy on the poor nurse (she is probably just an intake nurse who knows nothing…and I am probably acting very scary right now, not my best moment).

My mom will agree however that they give us absolutely no information and she is stunned by that (not what we are used to from back home).

Another nurse finally comes in and lets me know that the doctor is on his way. That makes me feel better, maybe he can diagnose me and tell me what is going on and finally give me some release.

I want to have some medicine but they are refusing to let me take the Vicodin I brought with me, I am in pain, I was ripped open and a baby came out of me a few days ago, remember ?? and I am being denied my pain meds hours overdue.

I am scared the doctor will “check” me as I am extremely sore and in no rush to relive the trauma from my labor (can you say ouch!!!).  I am still bleeding a lot and my stomach really really hurts. They try to convince me that he will not check me…and to try to relax (tough chance). Unfortunately, I have learned not to trust what they say however. The nurse also tells me that we have to get my fever under control because it’s now 104.6 and get me into a gown (oh green gown, how I missed you) oh and into giant see through underwear and a gigantic pad (lucky me) and I need to stop shaking (easy for them to request).

The new nurse checks my vitals again, sucks in air and exclaims “Damn”…

 

 

 

 

The shakes are back…

As we drive to the hospital to feed our brand new baby girl (I can’t wait to see her, to feel that I have her, that she is real) I feel hot and cold at the same time, the dizziness and overall discomfort won’t go away.

I feel my forehead which is warm but not hot and compare with my husband’s. Like a child I ask my mom to feel it too and she agrees, definitely warm but not alarmingly hot.

Maybe a slight temperature, but like I said before, I gave birth only a couple of days ago and I get a fever for basically everything so I’m not that worried about feeling this icky.

Except when we reach the hospital, I feel worse…

I am hotter and suddenly the shakes are creeping up on me. As we wait for our turn to get a sticker, be allowed in and wash our hands (I sent my husband to Mc Donald’s with our son to get some fries) I tell my mom to hold on.

I have to sit down because the room starts to spin and here comes my friends (more like my enemies) the shakes from last night. They get worse and worse and my mom tells me to stop shaking, like she did when we were kids when we were coughing or had the hiccups (which might sound a little brutal but actually do work).

Like a good daughter I try to listen to my mommy but I just can’t stop shaking for the life of me.

I tell my mom that I need to go the bathroom, trying to tell myself that I can control this but at the same time starting to wonder what is wrong with me, something like this has never happened to me before.

Since the restrooms by the NICU are being cleaned my mom searches for another bathroom on the first floor since I am now shaking so bad, I don’t feel that I can walk. I suggest that we ride the elevator up to the third floor where I know that there is a bathroom for sure since I just spent 2 days in recovery there (on the third floor not in the bathroom).

I really want to get away from people, I feel like they are staring at me and I really need to get a hold of myself. The trip to the bathroom didn’t help, I have to concentrate hard on walking and then there is if possible even more blood in the toilet (but still not enough to soak my pad but I’m starting to think enough to be concerned?) and the shakes are getting worse not better.

We go back down to the NICU and I can’t even focus on seeing my baby (sleeping peacefully, clenching her tiny hands).

My favorite NICU nurse, Kate is there, telling us she needs to eat in about twenty minutes (the baby not Kate that is).

I am now starting to realize that I will not be able to feed my baby, the shakes have turned violent and I am now so so cold, freezing actually.

I don’t know what I tell my mom, something about going to the bathroom again but I know she looks really worried now…

I walk as fast as the shakes will allow me to the bathroom right outside of the NICU and luckily the cleaners are all done in there. I make it in to a stall before I sink to the ground, thinking something is really wrong here…

I try several times to get to my feet but I’m shaking so much I have to make attempt after attempt, clenching my teeth as I’m hugging my body, trying to zip up my sweater further than it can go and telling myself that I need to make it back into the NICU to tell my mom we need to go home.

All I want to do is crawl into to bed with about a hundred warm blankets, fall asleep and just forget about how cold and shaky I am and hopefully wake up feeling better.

I also attempt to call my husband to come pick us up but my phone keeps sliding out of my hands and forget dialing, it is a lost cause, this is starting to get ridiculous.  

As I walk back into the NICU, I believe even more people stop and stare at me but I have a one track mind, people fade out of my vision and I can see that my mom is now looking more than concerned.

I tell her that I don’t think I can feed the baby and that I need to go home but as she tells me to stop shaking and tell her what is wrong and my eyes well up with tears as I can’t, she takes matters into her own hands. She usually lets me (and my sister) do the talking here (in the US) as she is Swedish (but quite good at English I might add) but right now she goes to find the nurse.

I don’t even know what they are saying as I become less and less aware of my surroundings, all I know is, I WANT to stop shaking and get warm. Oh why, why is it so damn cold in here, could they maybe turn off the A/C, it’s ridiculously cold for these tiny poor infants!

Nurse Kate takes one look at me and I can hear her tell mom that I must be running a seriously high fever. No I protest, it’s just the shakes (whatever that means). She leaves just to come back seconds later with a wheel chair. I do think I can walk (besides where am I going in that? I have had enough of wheelchairs for I don’t know…about a life time) but when I stand I realize that I absolutely can’t walk and am actually grateful as I sink down in the rolling chair.

Kate asks if I can direct my mom to triage (isn’t it only extremely pregnant women and women with pregnancy complications that go there? I have time to think) but she takes another look at me and apparently determines that I am in no condition to direct anybody anywhere. And off we go to the elevators and triage, Kate wheeling the chair and my mom hurrying after us.

 

 

 

Shopping delight…cut short!

We go shopping, well if you call Target and Babies r us shopping…I haven’t been out for weeks so I’m not picky.

I try to concentrate on what I really need; the problem is we need so much, at least according to me.

My mom is an expert shopper but she is more interested in things for the house (where she has been cooped up) than cute little pink baby outfits.

I still can’t believe it is real. I don’t think it will completely hit me until we get to take her home, we have a baby girl!

Finally I get to buy girl stuff, don’t get me wrong I love shopping for my son but come on, have you seen the girl stuff for babies lately?

We need some boring things as well, what we like to call “essentials” and as I walk through the aisles at Target I feel more and more tired and slightly dizzy as I’m gripping the red cart tight, leaning in to it as I’m pushing following my mom’s excited stride.

Sometimes Target has the ability to get you very tired though and I haven’t been out of bed for 4 weeks basically, so of course I feel dizzy. I decide to power through, we have Babies r us after this after all, where I’m naturally a frequent buyer with all the essential VIP and bonus cards. There is something about a store full of baby stuff (pregnant women and babies), bright colors, new beginnings and hope!

My ultimate wish growing up was always (ALWAYS) being a mom, now I get to dress real live dolls!

Suddenly I feel faint in the middle of a (I have to admit, sorry mom) home decoration (?) aisle (I think it was lamps, “we do need one for the baby’s room and one by the pool table”) and stop for a second. My mom, still talking about the wonder of being out of the house (poor woman) notices that I am not answering her and turns around, zooming in on me with her mom eyes as she exclaims “you don’t look so good”…

I’m telling her that I’m just tired and that I just gave birth a couple of days ago for crying out loud, of course I’m feeling weak in the knees and there is no way I’m cutting this outing short!!

We get the Target shopping done and I manage to hang in there. Right outside, there is as Starbucks (you can’t go many places without a Starbucks but my hospital room didn’t exactly have one close by). I am craving caffeine but since I’m worried about it getting into the milk I am pumping, I have to “settle” for the double chocolate chip frappe I got more or less addicted to during my pregnancy. Mom never says no to a coffee so we push the cart toward two available seats (it’s a very small place so space is limited) and I’ll go order our drinks.

I still look pregnant so I worry that I will have to dodge some uncomfortable questions when I feel the barista glancing curiously at my stomach (nop, kid is out, come on please don’t ask, and luckily she doesn’t…I mean who cares…well after everything I shouldn’t, but I can’t help it, I care just a tiny bit).

Soon that is the least of my problems, I suddenly feel a big gush in my underwear where I have the biggest night diaper…I mean pad ever made, and it seems like it is leaking through (sorry about the TMI here people).

I go put the drinks in front of my mother and excuse myself to run to the bathroom. Maybe this outing wasn’t such a bright idea after all, I would much rather be in the comfort of my own house than at a Target restroom.

I do have back-up pads in my purse though but I am bleeding a lot (A LOT) and I don’t remember it being this bad after my first born. A little voice whispers in my head something about soaking a pad in an hour being bad but I’m pretty sure it’s been more like two hours since we left the house and I put in a new one, besides I gave birth only three days ago…

Reassured that it is normal and cheered up by the prospect of my frappe and going to Babies r us, I leave the restroom and head back to my mom.

At babies r us though, as I stand in line a severe headache is brewing, not even the cutest baby dresses size 0-3 months can hold my attention and I start to worry that I am coming down with something…

 

Difficult, personal and emotional subject matters…

As some of you know (or might have guessed), I (we) have been going through a difficult time lately, and no I’m not talking about potty training our almost 3 year old (yikes) or my 12 months old stopping nursing abruptly (ouch!).

I privately wrote about what was going on as it happened, because as you now know, I write about everything. Writing helps me process bad times and negative thoughts (as well as good times, positive thoughts and everything in between).

I thought about turning my writing into blog posts, but even though I have been writing about difficult, personal and emotional subjects before, I realized that this is just TOO personal.

I want to help people through my writing, help people feel less alone and for parents to know other parents are going through the same thing (or similar situations). That YOU are NOT ALONE!!

If my writing could help someone (anyone) else in even a small way, addressing difficult subject matters, even though emotionally draining and extremely difficult at times, would still be (SO) worth it.

But since this “situation” isn’t about me, I now know that it wouldn’t be fair for my son to blog about this.

He is not a baby or little kid anymore and I feel like he should have a say in what I share when it comes to his body and what is happening to him.

I still want people to know that “bad things happen to (a lot of) good people”, that “parenting is (extremely) hard” and that “no you are NOT alone” and how to stay grounded and positive in front of and for your kids, how it’s so SO difficult but SO important.

I feel like explaining this in a blog post about the blessing that is our son would be beneficial in healing not only myself but perhaps readers relating to receiving difficult news about one of their kids.

Some news are overwhelming and hard to hear, digest and handle. We got such news in October of last year…

In my next post I will try to explain the mother angst and agony trying to stay strong for my family and for my son, while knowing some mothers have it way, way worse.

We were the “lucky” ones and the indescribable relief is overshadowing everything else the last few months. The worry isn’t gone completely (and will never be) but for many unfortunate parents the worry is constantly there and heightened compared to the “normal” worries that simply comes with parenthood…

My heart goes out to all parents of sick, hurt and ill kids and I know that we are beyond blessed as a family by the outcome of all of this.

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Blue Christmas (part 1)

I know I shouldn’t be upset. This is in MY best interest after all and more importantly the baby’s, but when the PA says I have to be admitted to the HOSPITAL all I feel is dread…

 

A flood of memories wash over me, are they really saying my huge bump and I could be spending the Christmas holidays in a hospital?? and what’s even worse, do they really think the baby could be at risk???
I can’t believe it, as I try to laugh it off when asking if I can still go to Sweden (I can right? Maybe they just want to keep us for a 24 hour observation) the PA (my “friend” Eva, remember her!?) gives me a stern look telling me that this isn’t funny at all but quite serious…
I’m at a loss for words, what is wrong then? I exclaim!
Baby looked great on the ultrasound. The huge doses of pregnancy hormones have wired me shut down there (with no exit in sight for our little guy) and there are no abnormal doses of protein in my urine.
This is the answer I’m given…
“You have a fever, you show signs of pre-e, you are 30 weeks pregnant with a high risk pregnancy…”
Eva hands me the thick orange envelope, sending me on my way to the hospital entrance and admittance window…
I cannot believe it as I stare at the paperwork the words “acute febrile illness”, “cyst on left ovary”, “history of pre-eclampsia”, “history of preterm labor” and “geriatric pregnancy” become blurry.
I know I’m acting like a child, I need to suck it up and take care of myself and ultimately this little innocent life inside of me but…
This pregnancy has been so bad, straight from our miscarriage, I have been feeling so ill from the very first moment, I’m so huge and so hormonal and so alone and right now so sick…
I can’t help it, even if I’m totally “geriatric” (being in my late 30s and all) and already a mother of 3, my tears spill over as I’m asking (more like pleading and begging) the PA Eva one last time…
“If this turns out to be something I ate or a stomach bug instead of pre-e and the baby and I both look good in a few days do I get to go with my family to Sweden?”.
“Honestly, NO”
what??
“You have a blood filled cyst that can rupture any moment and even if it’s unlikely you don’t want that to be on a plane”.
“You could develop pre-eclampsia especially since you had it before or your water can break despite the barrier due to your big baby and this being your fourth- you don’t want any of those or other seriously life threatening scenarios to happen thousands of miles from your doctors or thousands of miles up in the air-trust me!”
“You know, you are not flying to LA BUT Europe, being from Germany, I know just how far and what that trip entails”
Wow, how come nobody had explained it to me like that before?
I was here today under the assumption that I was “allowed” to travel to Sweden, just needing the letter to give to the airline (and my meds, syringes and letter for those).
It feels like me getting sick blew every change of me (and us) going away…
The pouty child in me gets mad at her but after my tearful FaceTime call to my mom as I walk over to the big hospital around the corner I realize that I’m under excellent care, that I should listen to the professionals and that my plans (and dreams for the holidays) and my will means nothing when all that matters is this baby’s health! (And my own since I’m the one cooking him until he is completely [hopefully] done).
Before I even reach the hospital doors, I get the text that the kids at home are throwing up…

Freakishly Fertile…?

We don’t “try” again as much as we decide “to see what happens”. There are no ovulation calendars or planned intimacy sessions. There are no counting days or keeping track of cycles. There is no rush to run out and get pregnancy tests or religiously check my “body temperature”. We also don’t “get it on” more often…

BUT we don’t use protection and I’m trying not to feel terrified…

We don’t expect it and we certainly don’t count on it. I’ve heard the stories how you are most fertile after a loss, but that means right after, right? Not after a couple of months?

“What is meant to be will be…”

Do I believe that?

Me-the planner and organizer, thinker and over-analyzer!?

I thought we had more time…

Did we really, REALLY decide, DECIDE to try again or did we leave it up to chance and was that a “smart”‘decision (if it really wasn’t a decision at all…)

Are we just freakishly fertile? I mean since we just stumbled upon getting pregnant without even trying at all last time (quite the opposite actually) when some people try unsuccessfully for years…
Are we just “lucky” or could you even call it that knowing the end result…?

But what about this time? Was it Luck? A blessing? A choice, a chance, a decision, random happening, fate…
What?

I tell myself to not even check until my period is more than a week late and not even stress about my third cycle after our loss…

Because it IS coming, right?

Except it is NOT…

It is the end of June and I have to face that I’m already six weeks along-fear and excitement and all…

When I try to get an appointment to confirm, they can’t fit me in for another three weeks.

There is no way, I’m a nervous wreck, fragile, vulnerable and obsessed with the fear of blood and yet another loss. I can NOT wait this long.

I don’t want to go through this again..
I’m just not ready!
Why didn’t we wait longer, plan more, DECIDE?

I debate disturbing my very busy doctor (I’m sure) just to tell her the “news” and see if she can squeeze me in sooner.

I have to (I just HAVE to) do it for my own sanity (those around me agree).
My husband tells me that my doctor is human and why don’t I just try to reach out so that I will stop obsessing and feel better.

Except my fear is that she won’t answer…

I don’t want to tell anybody until I’m at least 12 weeks along…and then until my genetic tests come back…

I wish I didn’t have to tell myself, I wish I didn’t have to know.

I text my doctor’s private cell phone (hoping she won’t be upset) and pray for an answer…

My doctor DOES answer and she is completely awesome and can fit me in in a few days. These are the best news in like forever.

I can’t wait…

At the same time I’m dreading the appointment- even entertaining the idea of skipping it all together…

Something I would of course never do…

I’m crossing off days on our fridge calendar.

The hardest part is not telling my mom. She already knows something is up (of course she does).

Even before my appointment I start feeling sick. There is no denying this crippling nausea-something is definitely going on…

But will it continue “to go on this time”??

 

 

Try and try again…?

The doctor advices us that IF we are going to try again, we have to wait at least two menstrual cycles but no more than three (two due to the thinning lining of the uterus-this might happen again- and three due to my old age!…). I can’t even think, my head is spinning ( I wanted THIS one!) but my husband starts talking about having another one right away in the car. He claims this was a sign that we definitely should have another one- a FOURTH!!!
Was it? Or was this a hint that we definitely should NOT have another one?

I struggle with this…

I always knew I wanted a big family, I love having kids and being a mother (I truly do, despite its challenges). I however haven’t had the easiest deliveries or newborns and I already have THREE kids. Three wonderful, happy, healthy blessings! I always wanted three, I can handle three and yes I’m completely happy and satisfied with three! But I can’t deny that I wanted this fourth one so badly that I was aching for her. This experience completely sold me on having yet one more, I can handle it I thought, I go to specialty doctor (a team that will do anything to prevent preterm labor and/or any complications), I’m in constant and excellent care, everything went great with my youngest and wouldn’t it be amazing to give my daughter a sister!?

I also knew that we had to “strike while the iron was hot”. If we were going to do this-we were going to do it now (well in 2-3 months). To say I had mixed feeling was an understatement…

We continue with life like nothing ever happened  (I embrace the busyness of having three children with all their needs and activities). But of course something DID happen.

I continue to get reminder letters in the mail for weeks-reminders for ultrasounds (even the big 20 week autonomy scan reminder is already in our mailbox). When they call to ask to schedule my six week check-up after delivery I finally had enough. I yell at the poor, clueless receptionist that the delivery happened alright but the fetus was smaller than the palm of my hand and I don’t need a six week check-up darn it!!!

At least my outburst seemed to work, no more letters or phone calls and as soon as the doctor cleared me for physical activities, I stopped bleeding and stopped taking (positive) pregnancy tests (pathetic I know), I start waiting for my “real” period instead- debating our decision back and forth.

My husband is so pro trying again that he surprises me. I don’t remember him being so adamant about number three…

My period lags behind which the doctor warned me about and I enjoy irregular bleeding for my first month after the loss instead! (Fun times…)

Spring is over in a haze-I’m really not much for socializing, I feel weary, weepy and weak. Besides-it is way to hot! I really have to pull myself together for the kid’s birthdays. I can’t muster up much joy- the only highlight being my brother and his family coming to stay with us for a few weeks, coinciding with my little one’s first birthday!!

The summer is fast approaching. I can’t believe my oldest is graduating kindergarten. I feel old yet panicky about how fast time flies and how precious life really is.

If we want another baby, shouldn’t we just go for it?

I know that deep down I really want to go for it- but I’m scared. It’s hard to stop thinking about our “failed attempt” and to start thinking about pros and cons- what happened, my age, my history of preeclampsia, preterm labor and the Down syndrome scare- first of all. Something could go wrong, something unexpected this time-that is clearly and constantly on my mind.

Secondly there is the pregnancy, delivery and actual newborn phase to think about. Am I willing to go through it all again (because this is in ME-nobody else). The aches and pains, the sleepless nights, the exhaustion. I also constantly think about my three kids and their need for attention love, time and devotion.

All of these are worth it I know- the aches and pains. Who am I kidding, I don’t mind being pregnant and even though the delivery is excruciating everything disappears in an instance once the baby is in your arms and even the lack of sleep (clearly the worse part) is worth it. I know I might be spread thin as a mom, but I love my kids tremendously and I know we can make it work.

My husband seem almost desperate (even offering to take more time off and work less…) at times to sway me to agree to just try for another baby (we even put a time limit-if we don’t “make it” this year, he will have his surgery and we will stay happy with the kids we have and never talk about this again). He knows deep inside that I do want to try. He listens to me patiently night after night argue against it, all the fears are being brought up time and time again. It feels like this loss but also the conception just “happened” to us- there was zero planning before…

It’s a big decision and I feel like I’m drowning in it. All I know is that I don’t want to go through this ever again or worse-that’s the fear-that “next time”, we won’t be as lucky…

By June, I’ve had two consecutive “real” periods…

 

No more perfect destination…

 

Only a couple of days before the safety of the second trimester I’m rushed to the hospital, it’s also the day that we are supposed to go on our vacation (bags packed, dog at grandma and grandpa’s).

At my last ultrasound they discovered-not only the lack of a heartbeat but-several centimeters of blood in my uterus. It’s an internal hemorrhage.

This could have been a disaster if I had gone on the trip apparently…
Think bleeding out on a plane unable to land, or anything happening on a location where the healthcare wouldn’t have been like it is here..

I spent the night in the ER. The nurses and doctor are extremely nice. The eerie thing is that the fetus is still there (whole and there…) but with this much bleeding they can’t send me home until morning. They take every precaution necessary and I’m very thankful.

My discharge papers still don’t say that I miscarried. I stare at the “pregnancy weeks” on the release notes. The diagnosis is internal bleeding/uterus hemorrhage.

I talk to my Obgyn specialty doctor, who is amazing, from my ER bed. She shares that she herself suffered a miscarriage at 12 weeks that shook her so much she won’t consider going through pregnancy again (she has a healthy daughter). She describes her experience in detail and tells me what I can expect (even if every case and woman are different). I’m beyond grateful that she is so open and honest (brutally so…this WILL suck!).

I will loose this baby-because that is the “BEST” case scenario…

Since there is no longer a heartbeat, she most have stopped growing along the way (even if this started as a normal pregnancy…as the others…with no signs…no bleeding…nothing “abnormal” at all).
She says to come in on Monday and if nothing happened before then to schedule the surgery…to remove the fetus (my baby who I now have to think about as just one of nature’s mistakes and hope that my body will take care if it naturally…).

I’m a very level headed, logical and grounded person and I must admit I can understand the whole “logical reasoning” that “it’s not a baby yet”, “it’s for the best”, “it’s natural for nature to get rid of the unhealthy” but somehow it’s extremely difficult to wrap your head around all of that so far along when you were so excited about the actual real live baby ahead…

My insides are playing Darwinism at its finest…this one is damaged and won’t survive…

It seems cruel…

So the waiting game begins..

Might I point out that I could have been at a white sandy beach right now…sipping a pina colada (fine; virgin colada…wrestling three kids in the white sand…)

I know I’m lucky though, even if I planned and hoped and dreamed and thought I reached the safety zone-I’m not THAT far along…

I’m so much luckier than many others, I’ve yet to have a noticeable baby bump (even though the bump IS already there and WE can totally already tell…) or felt our baby girl kick yet…

The day before my appointment to schedule my surgery it happens and after googling AND talking in depth with my doctor, I’m prepared!

Or sort of…can you ever be prepared for something like this?

 

The “safe zone” of pregnancy…

It’s a girl…or was a girl I guess…

They think she just stopped growing. But she was there, actually she still is there-everything that is “supposed” to be there is there- I have the picture as “proof”. The grainy baby shaped white “blob” against the black background. She looked just like the other ones. Just like the other “pictures” I saved (to some day make the kids each a baby book-like the one for my firstborn…).

Everything was perfect…but then it wasn’t. All the tests show positive right away (the pink plus signs, the two parallel lines, the word “yes” and the actual word “pregnant”) with the first drop… and continue to do so…even after…

There were no tell tale signs or bleeding and everything looked completely normal…until it didn’t.

I just never expected this…everything started like it did with my other beautiful healthy children. I have lost pregnancies before-when we were trying and then succeed…but then I ended up with a heavy bleed… but I have never been to a doctor’s appointment before where the baby had no heartbeat.

How could it be fine and all there and progressing and then not?

How could you go weeks and weeks expecting, hoping, planning- happy, excited, involved. And then the nothingness…

Lots of women go through this everyday-most before the “safe zone” of 12 weeks (1 in 4 they say), but many even further along, and then there are the few who have to suffer through the unimaginable devastation of stillborns and infant loss.

We went weeks, months actually still hoping, praying for a detectable heartbeat and growth-it was there-and then it wasn’t…

We planned room arrangements, a new car, we found out the gender…

Perhaps everything was planned prematurely but we were so close to the safety zone…

I ordered a “gender reveal” princess cake…
A cake we never picked up…

I had lots of hopes and dreams for this child…a child that will now never be…

You can argue that it was still a fetus, that there had been signs (for example there was no severe nausea in the first trimester like with the others). That there was no “baby” yet. That nature got rid of a “defected” fetus…

But try telling a pregnant momma that-a momma who has known about the pregnancy from week 5…

Then the bleeding started…so close to the second trimester and the safe week. The doctor even said light bleeding does not necessarily mean…

But I knew…

But hope is a funny thing…

I had borrowed a heart monitor from a friend…it was pink and promised that you should be able to hear your baby’s heartbeat from week 10 (but you could try from week 8). I felt pathetic trying to locate my baby girl’s heart on my own-when professionals hadn’t been able to at our last appointment…

The dread when you feel the ultrasound technician’s fear, worry and sympathy is excruciating. I like being prepared, and even though you can never prepare for something like this, I was in complete and utter shock and disbelief.

Anything but that…I just wasn’t expecting it – at all…

We were supposed to go on vacation. We had been excitingly packing…now this.

My doctor said not to loose hope-that it was still “50/50”. We planned to still go on the tropical “all inclusive” vacation. We needed it. I needed it.

We hadn’t told the kids yet (but I think our oldest might have been suspicious). We were going to tell them that weekend…before this happened.

There was no blood the day before our trip, we hadn’t told anybody…

A baby for Halloween THIS year. A baby coming with us home for Christmas-everyone who knew were excited…

I told my hairdresser the baby had stopped growing…that there was no heartbeat…

I might be walking around with something dead inside me…

I felt uncomfortable, down, awkward, sick, like a failure…

This is how being in “limbo” feels”.

She encouraged me to go, to get away, to think about something else (even though the thought of “her” were all consuming).

Everybody encouraged us to go…
The white, sandy beaches, the sun, the food the service- it would be good for me-for us.

The kids were excited, they packed their own little backpacks-everything was done and ready to go…

Then my body started to betray me- the beginning of the end of this journey started…

 

An adventurous week; difficult news

IMG_7161IMG_7160IMG_7162I can’t believe that we are back here…to the hematology department at Children’s Hospital. The flashbacks are acute and many.

I don’t know how they do it, I really don’t. I ache for them-these parents. I feel embarrassed to be here somehow and yet…I know I have to, we have to. Something IS wrong for real-just not as wrong, or as real as for most of these people here. The reality of what is going on on the third floor of this hospital for kids is devastating. I AM embarrassed to even feel sad because it seems I don’t have the right to somehow, and they don’t need my pity, and there is literally nothing I can do to help.

I praise these doctors for doing what they do, for pushing forward, for trying their very best, for smiling…
But the real heartbreak are these strong, brave little people who are just getting the toughest childhood imaginable…and their poor parents.

I have been dreading this appointment since my daughter was 18 months old. We found out when she was 11 weeks old, (just shy of 3 months) and cut her “tied tongue” to be able to breastfeed, that she had some kind of bleeding issue. She would not stop bleeding no matter what the tongue specialist, her pediatrician and the ER doctor did. She was loosing so much blood she had to have emergency surgery right away…

This tiny little preemie baby girl who had already been through so much in her very short life…
It was one of the worst days of my life. Seeing her bleed uncontrollably in the backseat when I rushed her to the ER is an image imprinted in my brain forever…

My baby girl was in surgery for hours, her little pale body and all that blood. Afterwards she was groggy and swollen in my arms. I felt awful. She wanted to eat so bad but was too hurt to feed. Seeing her in so much pain was agony.

We spent 3 days at Children’s Hospital before the 4th of July weekend and she still refused to eat. I didn’t sleep at all and was a wreck. Grandma and auntie were home with big brother because dad had to continue working (even though I’m sure that was extremely hard on him).

I remember the nurses trying to help squirting my pumped breastmilk into baby’s mouth with a syringe- it finally worked enough to get her off the IV. She was this little girl in a huge bed surrounded by rolled up baby blankets with wires and monitors…
It was utterly terrifying.

On day two we saw a couple of doctors from the hematology department. They drew a lot of blood to test our baby girl for a bleeding disorder. Since she was so tiny yet-still on the preemie scale, they couldn’t take too much blood from her little body-so we had to come back for a follow up.

The follow up was on the third floor of Children’s Hospital a week later. Baby girl had gotten her color back and she had finally started to nurse again. My mom was thankfully able to accompany us this time, having flown in on the 4th of July withstanding delays and cancelled flights. It was such a support to be able to lean on her as we entered what must be one of the most depressing places-full of sick-really, really sick kids.

My daughter had lost too much weight to be able to draw the required blood panel for the full spectrum of blood disorders so the doctor sent her home with a liquid that makes blood clot in the event of blood trauma.

The tests came back negative for any of the more severe blood disorders…and for leukemia. I have never prayed harder for these results..

Then again the unfairness of it all, seeing all the other kids and their parents. How do they do it? how do they live and breathe when their insides must be breaking.
These caregivers are incredibly strong that goes without saying but…these kids…I don’t have words, little superheroes who just deserve way better lives.

Hoping for them as I’m standing here at the hospital with my two (big brother is in school) happy, healthy (for the most part) children, is the same for them, that they will beat this, they will get better and this will all be a distant memory…

The reality though is a punch to the stomach and the embarrassment of even feeling like this when I’m fine and my kids are fine is raw and present.

This is the 4th time here seeing her hematology doctor. When we saw him when baby girl was 18 months old we still didn’t get to do all of her testing, because of her low weight. I was informed that in order to complete everything we needed to admit her to the hospital for a few days to monitor her while drawing the required amount of blood for the full panel of blood disorders. I declined these tests knowing that she didn’t have the more serious ones and signing papers that I declined treatment was really difficult-was I doing the right thing?

I promised (myself and her doctor) to keep a close eye on her, knowing full well that you can’t bubble wrap your kids (no matter how much you want to).

Fast forward until now, there is no more denial. Every time she bleeds from simple cuts and scrapes it is way too much- abnormally so. Her new pediatrician ordered more labs at her 3 year check up and testing confirmed without a doubt that our daughter does have a bleeding disorder. He sent us straight back here again…so here we are.

This has truly not been the best week..

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