Category Archives: Getting poked
The doctor advices us that IF we are going to try again, we have to wait at least two menstrual cycles but no more than three (two due to the thinning lining of the uterus-this might happen again- and three due to my old age!…). I can’t even think, my head is spinning ( I wanted THIS one!) but my husband starts talking about having another one right away in the car. He claims this was a sign that we definitely should have another one- a FOURTH!!!
Was it? Or was this a hint that we definitely should NOT have another one?
I struggle with this…
I always knew I wanted a big family, I love having kids and being a mother (I truly do, despite its challenges). I however haven’t had the easiest deliveries or newborns and I already have THREE kids. Three wonderful, happy, healthy blessings! I always wanted three, I can handle three and yes I’m completely happy and satisfied with three! But I can’t deny that I wanted this fourth one so badly that I was aching for her. This experience completely sold me on having yet one more, I can handle it I thought, I go to specialty doctor (a team that will do anything to prevent preterm labor and/or any complications), I’m in constant and excellent care, everything went great with my youngest and wouldn’t it be amazing to give my daughter a sister!?
I also knew that we had to “strike while the iron was hot”. If we were going to do this-we were going to do it now (well in 2-3 months). To say I had mixed feeling was an understatement…
We continue with life like nothing ever happened (I embrace the busyness of having three children with all their needs and activities). But of course something DID happen.
I continue to get reminder letters in the mail for weeks-reminders for ultrasounds (even the big 20 week autonomy scan reminder is already in our mailbox). When they call to ask to schedule my six week check-up after delivery I finally had enough. I yell at the poor, clueless receptionist that the delivery happened alright but the fetus was smaller than the palm of my hand and I don’t need a six week check-up darn it!!!
At least my outburst seemed to work, no more letters or phone calls and as soon as the doctor cleared me for physical activities, I stopped bleeding and stopped taking (positive) pregnancy tests (pathetic I know), I start waiting for my “real” period instead- debating our decision back and forth.
My husband is so pro trying again that he surprises me. I don’t remember him being so adamant about number three…
My period lags behind which the doctor warned me about and I enjoy irregular bleeding for my first month after the loss instead! (Fun times…)
Spring is over in a haze-I’m really not much for socializing, I feel weary, weepy and weak. Besides-it is way to hot! I really have to pull myself together for the kid’s birthdays. I can’t muster up much joy- the only highlight being my brother and his family coming to stay with us for a few weeks, coinciding with my little one’s first birthday!!
The summer is fast approaching. I can’t believe my oldest is graduating kindergarten. I feel old yet panicky about how fast time flies and how precious life really is.
If we want another baby, shouldn’t we just go for it?
I know that deep down I really want to go for it- but I’m scared. It’s hard to stop thinking about our “failed attempt” and to start thinking about pros and cons- what happened, my age, my history of preeclampsia, preterm labor and the Down syndrome scare- first of all. Something could go wrong, something unexpected this time-that is clearly and constantly on my mind.
Secondly there is the pregnancy, delivery and actual newborn phase to think about. Am I willing to go through it all again (because this is in ME-nobody else). The aches and pains, the sleepless nights, the exhaustion. I also constantly think about my three kids and their need for attention love, time and devotion.
All of these are worth it I know- the aches and pains. Who am I kidding, I don’t mind being pregnant and even though the delivery is excruciating everything disappears in an instance once the baby is in your arms and even the lack of sleep (clearly the worse part) is worth it. I know I might be spread thin as a mom, but I love my kids tremendously and I know we can make it work.
My husband seem almost desperate (even offering to take more time off and work less…) at times to sway me to agree to just try for another baby (we even put a time limit-if we don’t “make it” this year, he will have his surgery and we will stay happy with the kids we have and never talk about this again). He knows deep inside that I do want to try. He listens to me patiently night after night argue against it, all the fears are being brought up time and time again. It feels like this loss but also the conception just “happened” to us- there was zero planning before…
It’s a big decision and I feel like I’m drowning in it. All I know is that I don’t want to go through this ever again or worse-that’s the fear-that “next time”, we won’t be as lucky…
By June, I’ve had two consecutive “real” periods…
Only a couple of days before the safety of the second trimester I’m rushed to the hospital, it’s also the day that we are supposed to go on our vacation (bags packed, dog at grandma and grandpa’s).
At my last ultrasound they discovered-not only the lack of a heartbeat but-several centimeters of blood in my uterus. It’s an internal hemorrhage.
This could have been a disaster if I had gone on the trip apparently…
Think bleeding out on a plane unable to land, or anything happening on a location where the healthcare wouldn’t have been like it is here..
I spent the night in the ER. The nurses and doctor are extremely nice. The eerie thing is that the fetus is still there (whole and there…) but with this much bleeding they can’t send me home until morning. They take every precaution necessary and I’m very thankful.
My discharge papers still don’t say that I miscarried. I stare at the “pregnancy weeks” on the release notes. The diagnosis is internal bleeding/uterus hemorrhage.
I talk to my Obgyn specialty doctor, who is amazing, from my ER bed. She shares that she herself suffered a miscarriage at 12 weeks that shook her so much she won’t consider going through pregnancy again (she has a healthy daughter). She describes her experience in detail and tells me what I can expect (even if every case and woman are different). I’m beyond grateful that she is so open and honest (brutally so…this WILL suck!).
I will loose this baby-because that is the “BEST” case scenario…
Since there is no longer a heartbeat, she most have stopped growing along the way (even if this started as a normal pregnancy…as the others…with no signs…no bleeding…nothing “abnormal” at all).
She says to come in on Monday and if nothing happened before then to schedule the surgery…to remove the fetus (my baby who I now have to think about as just one of nature’s mistakes and hope that my body will take care if it naturally…).
I’m a very level headed, logical and grounded person and I must admit I can understand the whole “logical reasoning” that “it’s not a baby yet”, “it’s for the best”, “it’s natural for nature to get rid of the unhealthy” but somehow it’s extremely difficult to wrap your head around all of that so far along when you were so excited about the actual real live baby ahead…
My insides are playing Darwinism at its finest…this one is damaged and won’t survive…
It seems cruel…
So the waiting game begins..
Might I point out that I could have been at a white sandy beach right now…sipping a pina colada (fine; virgin colada…wrestling three kids in the white sand…)
I know I’m lucky though, even if I planned and hoped and dreamed and thought I reached the safety zone-I’m not THAT far along…
I’m so much luckier than many others, I’ve yet to have a noticeable baby bump (even though the bump IS already there and WE can totally already tell…) or felt our baby girl kick yet…
The day before my appointment to schedule my surgery it happens and after googling AND talking in depth with my doctor, I’m prepared!
Or sort of…can you ever be prepared for something like this?
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I can’t believe that we are back here…to the hematology department at Children’s Hospital. The flashbacks are acute and many.
I don’t know how they do it, I really don’t. I ache for them-these parents. I feel embarrassed to be here somehow and yet…I know I have to, we have to. Something IS wrong for real-just not as wrong, or as real as for most of these people here. The reality of what is going on on the third floor of this hospital for kids is devastating. I AM embarrassed to even feel sad because it seems I don’t have the right to somehow, and they don’t need my pity, and there is literally nothing I can do to help.
I praise these doctors for doing what they do, for pushing forward, for trying their very best, for smiling…
But the real heartbreak are these strong, brave little people who are just getting the toughest childhood imaginable…and their poor parents.
I have been dreading this appointment since my daughter was 18 months old. We found out when she was 11 weeks old, (just shy of 3 months) and cut her “tied tongue” to be able to breastfeed, that she had some kind of bleeding issue. She would not stop bleeding no matter what the tongue specialist, her pediatrician and the ER doctor did. She was loosing so much blood she had to have emergency surgery right away…
This tiny little preemie baby girl who had already been through so much in her very short life…
It was one of the worst days of my life. Seeing her bleed uncontrollably in the backseat when I rushed her to the ER is an image imprinted in my brain forever…
My baby girl was in surgery for hours, her little pale body and all that blood. Afterwards she was groggy and swollen in my arms. I felt awful. She wanted to eat so bad but was too hurt to feed. Seeing her in so much pain was agony.
We spent 3 days at Children’s Hospital before the 4th of July weekend and she still refused to eat. I didn’t sleep at all and was a wreck. Grandma and auntie were home with big brother because dad had to continue working (even though I’m sure that was extremely hard on him).
I remember the nurses trying to help squirting my pumped breastmilk into baby’s mouth with a syringe- it finally worked enough to get her off the IV. She was this little girl in a huge bed surrounded by rolled up baby blankets with wires and monitors…
It was utterly terrifying.
On day two we saw a couple of doctors from the hematology department. They drew a lot of blood to test our baby girl for a bleeding disorder. Since she was so tiny yet-still on the preemie scale, they couldn’t take too much blood from her little body-so we had to come back for a follow up.
The follow up was on the third floor of Children’s Hospital a week later. Baby girl had gotten her color back and she had finally started to nurse again. My mom was thankfully able to accompany us this time, having flown in on the 4th of July withstanding delays and cancelled flights. It was such a support to be able to lean on her as we entered what must be one of the most depressing places-full of sick-really, really sick kids.
My daughter had lost too much weight to be able to draw the required blood panel for the full spectrum of blood disorders so the doctor sent her home with a liquid that makes blood clot in the event of blood trauma.
The tests came back negative for any of the more severe blood disorders…and for leukemia. I have never prayed harder for these results..
Then again the unfairness of it all, seeing all the other kids and their parents. How do they do it? how do they live and breathe when their insides must be breaking.
These caregivers are incredibly strong that goes without saying but…these kids…I don’t have words, little superheroes who just deserve way better lives.
Hoping for them as I’m standing here at the hospital with my two (big brother is in school) happy, healthy (for the most part) children, is the same for them, that they will beat this, they will get better and this will all be a distant memory…
The reality though is a punch to the stomach and the embarrassment of even feeling like this when I’m fine and my kids are fine is raw and present.
This is the 4th time here seeing her hematology doctor. When we saw him when baby girl was 18 months old we still didn’t get to do all of her testing, because of her low weight. I was informed that in order to complete everything we needed to admit her to the hospital for a few days to monitor her while drawing the required amount of blood for the full panel of blood disorders. I declined these tests knowing that she didn’t have the more serious ones and signing papers that I declined treatment was really difficult-was I doing the right thing?
I promised (myself and her doctor) to keep a close eye on her, knowing full well that you can’t bubble wrap your kids (no matter how much you want to).
Fast forward until now, there is no more denial. Every time she bleeds from simple cuts and scrapes it is way too much- abnormally so. Her new pediatrician ordered more labs at her 3 year check up and testing confirmed without a doubt that our daughter does have a bleeding disorder. He sent us straight back here again…so here we are.
This has truly not been the best week..
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